Home Partner Profiles The power of a network: solving problems in Melanoma

The power of a network: solving problems in Melanoma

The Melanoma Patient Network Europe (MPNE) is a network of predominantly European Melanoma patients, carers and patient advocates.

The Melanoma Patient Network Europe operates in a multi-dimensional network system connected by an English-speaking central network, supporting and educating across language and cultural barriers.

Melanoma Patient Network Europe’s principles

Organised as a loose network unified by the shared desire to make a tangible difference to patients, we act according to four basic MPNE principles:

  1. Patients first.
  2. Solutions, not problems.
  3. Data, not opinions.
  4. If you don’t do it – no one will.

We in MPNE believe that education is protection for patients. For this reason, any health-related information on our forums, in our publications and at our meetings needs to be referenced. We provide continuous education in how to recognise reliable sources of medical information, the importance of evidence-based medicine and guidelines, as well as quality criteria for melanoma care.

We in MPNE encourage patients to educate themselves. We offer training opportunities in how to access and read scientific literature, workshops in statistics and trial design, and facilitate common conference visits with introductory Quickstart programmes to ensure advocates and patients benefit optimally from their attendance.

Through our annual conferences and workshops, we have created a multi-stakeholder environment of patients, advocates, oncologists, researchers, regulators, pharmaceutical industry, HTA bodies, payors and policy makers, as we believe that current complexities in healthcare can only be addressed in such a setting.

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AREAS OF EXPERTISE
  • Patient advocacy;
  • Patient perspectives on policy issues; and
  • Citizen science.
RESEARCH INTERESTS
  • Melanoma and Melanoma therapies;
  • Immuno-oncology;
  • Rare Melanomas;
  • Patient-centric Clinical Trial Designs;
  • Innovation in regulatory science;
  • Sustainable Healthcare Innovation; and
  • Collective Intelligence and networked education.
RECENT PUBLICATIONS

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